Integrating patient-centered outcomes in rehabilitation and community spinal cord injury care

Researcher(s): Dr. Ben Mortenson

Patient-centered spinal cord injury care considers the needs, preferences, and values of patients. Completing self-assessment questionnaires at specific time points in treatment can help clinical teams better understand how individuals with a spinal cord injury feel and can function, and plan the next steps in treatment. Researchers at McGill are interested in learning about your experiences and perceptions in completing the questionnaire.

Why should you participate in this study?

You will not personally benefit from participating in this study. However, you might contribute to the advancement of science in the field of patient-centered for people with a spinal cord injury.

You may be eligible to participate in this study if you:

  • Are 19 years of age or older
  • Have an SCI of any type
  • Have completed inpatient or outpatient rehabilitation for an SCI in Canada at any time in the past
  • Can read and write in English

This study will take place:

  • Remotely (online survey / phone / video call)

Time commitment:

  • If you choose to participate in this study, you will complete a short questionnaire and a 20-minute self-assessment on your computer or mobile device. You will be asked about areas such as self-care, resilience, mobility, and independence. We may also ask you to take part in a brief online interview to discuss your experience.

Compensation:

  • To thank you for your time, you will receive a $20 e-gift card for the self-assessment and a $25 e-gift card for the interview

For more information or to sign up to participate, please contact the study coordinator Jodine Perkins by email at mortenson.lab@ubc.ca or call (604) 737-6491.