A behavioural support intervention to promote participation among family support providers of people with spinal cord injury

Researcher(s): Dr. Heather Gainforth

ICORD PI Dr. Heather Gainforth and PhD student Rhyann McKay are interested in evaluating the acceptability and usefulness of a brief one-on-one intervention aiming to promote participation among family members, partners, and friends who support someone with a spinal cord injury. Participation is defined as involvement in life situations, which can range from self-care (e.g. exercise) to activities in one’s community or society (e.g. spending time with friends).

For this study, participants will take part in two brief behavioural support sessions to explore barriers to participation activities and come up with a plan to address those barriers. These sessions will be followed up with questionnaires and an interview to discuss participants perceptions of the intervention. The behavioural support sessions and interview will occur over the phone or via Zoom.

Why should you participate in this study?

By participating in this study, you may learn strategies that may help you engage in activities that are important to you. The results of this study may inform tools and resources to support family support providers of people with SCI in the future.

You may be eligible to participate in this study if you:

  • You are 18 years of age or older
  • You speak English
  • You share a close relationship with someone with a spinal cord injury (e.g., family member, partner, spouse, friend)
  • You provide emotional and practical support to someone with a spinal cord injury

You may not be eligible to participate in this study if you:

  • You are an employee of a formal caregiving agency
  • The person you provide support to is less than one-year post-injury.

Time Commitment

The total time required for this study is 2 hours – 2 hours and 45 minutes. The total time is comprised of the two behavioural support sessions (30 minutes each), three questionnaires (15 minutes each), and one interview (30 minutes – 1 hour). The sessions will be scheduled one week apart. Follow up including the questionnaires and interview will occur two-weeks and one month after the last session.

Compensation for participation

Participants in this study will receive $50 gift card for participating in this study. Participants will receive $25 for completing the two behavioural support sessions and $25 for completing the interview.

Where will the study take place?

The study will take place at UBC Okanagan. However, volunteers will participate remotely via phone or Zoom.

For more information or to sign up to participate in this study, please contact Rhyann McKay at rhyann.mckay@ubc.ca or phone 1-866-835-8979 (Mailbox #: 91042)