The SCI Action Canada Lab, under the guidance of Dr. Kathleen Martin Ginis, invites adults with spinal cord injury (SCI) across Canada to take part in the Canadian SCI Pain Survey. This study is led by Robert Buren, a PhD student at the University of British Columbia, who has lived with neuropathic pain since sustaining a T7 spinal cord injury in 2008. This survey aims to assess the current state of pain intensity and pain treatment methods among Canadians living with SCI. In addition to pain, the survey will explore various factors that impact the pain experience, such as: emotions, personality traits, anxiety, depression, support systems, resilience, sleep, and exercise habits.
You do not need to currently experience pain to participate. The goal is to gather a wide range of experiences to help better understand and manage pain within the SCI community. This study is funded by Mitacs and Spinal Cord Injury Ontario (SCIO).
Why should you participate in this study?
Chronic pain is one of the most difficult and life-altering challenges faced by individuals with SCI. By participating in this survey, you will help researchers uncover key insights into how pain is experienced and managed by people with SCI. The data collected will guide future treatments and interventions aimed at reducing or eliminating pain for the SCI community.
You may be eligible to participate in this study if you:
- Have a spinal cord injury (SCI) from a traumatic or non-traumatic cause.
- Are age 18 years or older.
- Can read, speak, and understand English.
- Live in Canada.
You may not be eligible to participate if you:
- Have a spinal cord injury or dysfunction from congenital (e.g., spina bifida), or, other neurological conditions (e.g., multiple sclerosis).
This study will take place: Remotely (online survey/phone/video call).
Time commitment: Approximately 30 minutes.
Compensation for participation: A Canadian vendor gift card will be offered upon completion of the survey. A Canadian mailing address will be required to issue to gift card. A very short (5 minute) identity verification on Zoom and a short discussion on living with SCI may be required before the gift card is issued.
For more information or to sign up to participate, please contact the study coordinator Robert Buren by email or by phone at (416) 705-6111.
